12.13.09

Posted in Anna, fears, health, life tagged , , , at 6:20 pm by Musings From A Michigan Mom

Our family is going through something major right now, big enough I created a separate blog just for that. You can check it out here:

http://ourtransplantjourney.wordpress.com

I’m back!

Posted in Uncategorized at 6:13 pm by Musings From A Michigan Mom

Finally, classes are finished, and I’m done being a hermit for now!   I don’t know if anyone reads this anymore, but just wanted to let you know I’m still here!

07.08.09

damn MSUD…

Posted in Anna, life, vent at 1:50 pm by Musings From A Michigan Mom

The past 5 days have been pretty lousy, over all.  And now I’m feeling tired, frustrated, and angry.

Anna’s levels have been elevated.  We believe this was brought on by her period.  There’s no other explanation, she hasn’t been sick, constipated, overexerted…. None of the usual reasons. And it’s been really difficult to get them back down.  Since Saturday, all she’s been allowed to eat is food with zero protein.  This amounts to pure sugar.  Hunt’s Lemon Pudding, popsicles, frosting, candy, Gatorade.  That’s it.  Now, for a healthy child, this seems like a dream diet.  When it’s what you’re forced to eat, it becomes almost naseating.  And that’s exactly what it has been for her.  She just doesn’t want to eat at all.  She is, thankfully, drinking double the amount of formula she usually does.  But she’s really starting to get down.  After her dietitian called yesterday with her latest blood test results, Anna wrote on a piece of paper “I want to be killed”.  That breaks my heart!

Of course, most who read this won’t understand what MSUD is.  Or what high levels are, or why that’s bad.  Honestly, I am pretty damn tired of explaining to people.  It’s rare, no one has heard of it.  And even after I try to explain, I know that no one truly “gets it”.  They think they do… but they don’t. So there’s no way to express how difficult this is for her.. for us…

I’m trying not to go deeper in the depression that this can bring.  I’m trying not to curse God for giving Anna this damn disease.  Trying not to feel that the line “it’s part of God’s plan for her” is complete bullshit.  I don’t understand how God could put her through this?

06.06.09

PhotoHunt: Advertisement

Posted in photo, photo challenge at 8:49 am by Musings From A Michigan Mom

The only picture I have in my collection that includes advertising is this one.

It was taken last May at Oldsmobile Park, when we went to a Lansing Lugnuts game.

And that reminds me… I need to check out their schedule to see how many games we can catch this summer!

Camera Critters

Posted in cameracritters, photo, photo challenge, photos tagged , , at 8:41 am by Musings From A Michigan Mom

For this week’s Camera Critter entry, I chose this friendly mourning dove.  A few weeks ago, I went to the backyard to take laundry off the line.  This dove was hanging out on the fence, and stayed there while I got the camera, took pictures, went back inside and got Anna to see her too.

05.31.09

Special Olympics weekend!

Posted in Anna, Special Olympics, award, family, goals, happy, life at 8:24 pm by Musings From A Michigan Mom

The past 3 days have been amazing!

Anna competed in the Special Olympics for the first time.  The state summer games took place here in Mt. Pleasant, on the campus of Central Michigan University.  Over 2500 athletes from all over the state competed.  It was an exhausting weekend, but in a very good way!

Thursday night was Opening Ceremonies.

First participants of the Torch Run brought in the flag.  The Torch Run is a 9 hour relay run, carrying the torch,  that spans from the steps of the Capitol Building in Lansing all the way to the stadium, and the runners are all in law enforcement.

The state is split up into areas, usually consisting of 2 or more counties, and each delegation walked into the football stadium together. Our area is Area 7.

Anna is the one in the rain poncho, with her arms up.  She was nervous about walking into the stadium, but as you can see, she was pumped!

Our friends’ son Earl is the one off to the left in the U of M jacket.  Anna, on the other hand, is in the middle of everything, all about meeting the CMU football players!

She had somehow sweet talked a therapy dog handler into letting her hold the leash.  Here she’s waving to the crowd in the stands.

On the big screen at Kelly Shorts Stadium!!

Here are all of the athletes on the field.

The competition started on Friday. The weather was perfect – sunny and 60’s.  Anna’s first event was the 100 meter dash, in the afternoon.

Before the event, she relaxed a little bit.

Then some stretching with Chase, one of the volunteer coaches.

My parents drove up from St. Johns to cheer her on.  They are here, sitting with Lance, in the bleachers.

Soon it was time for the race!  She was nervous and excited.  I was a wreck! LOL  I was hoping she would do well, and win a medal, or if she didn’t win, she’d be able to emotionally accept a loss.  From the bang of the starter gun it took less than 30 seconds, but it seemed like an eternity!

The look on her face says it all!

VICTORY!

By the time she hit the finish line, I was in tears.  I don’t think I have ever felt so proud of her as I did at that moment.

She got a silver medal!!

She was so excited, and proud!

That night, although the competition goes on through Saturday, we attended the Closing Ceremonies and Victory Dance.  It was held in Kelly Shorts Stadium.  Several members of CMU’s football team were there to help out and meet the atheletes.

Sean Murnane, defensive line (he remembered Anna from a visit to her elementary school, so she has since dubbed him her boyfriend)

John Williams, defensive line

Antonio Brown, wide receiver

Here she’s with Michael.  He was a volunteer coach who worked with the track team, and Anna adored him.  She was thrilled because he danced the chicken dance with her.

Her favorite “celebrity” of the night, though was Brad.  We have actually known Brad for several years, and she was very excited to see him!

The ROTC volunteered in many areas of the games, which was great.  The helped stop traffic on Broomfield Road, between the athletic events and the dorms, which was so appreciated.  This humvee was on display… check out Anna looking tough in front of it as she poses (though I had to explain to her that soldiers do not lay across things when they are posing in front of their vehicles).

We then went home and crashed… we were both exhausted, and knew Saturday would be another busy day.  In fact, it took over half an hour just to get Anna up out of bed on Saturday morning!  But we had to get moving, because her last event, the softball throw, was at 9:30.

Before the event, though, we were both interviewed by Kimberly Purdy, formerly of 9&10 News and now Public Relations Director for Michigan’s Special Olympics.  We might be included in a video they are making about Special O’s!

And she got a BRONZE!

Her first Special Olympics, and she medaled in both events!

I feel like I can’t put into words just how amazing this weekend was.  There were many times that I was in tears, and I hadn’t expected it to be as emotional as it was.  I mean… I knew that I would cry when Anna competed.  But then, when you see an athlete, who can barely walk let alone run 100 meters, giving his or her all to get to the finish line, smiling ear to ear, with volunteers and spectators screaming and cheering them on… how can you not be moved?  For many of these athletes, this competition may be the only positive reinforcement they receive all year.  Special Olympics gives these athletes a chance for dignity, a chance to show that they do have gifts that the world may not otherwise see.  I am honored to have a Special Olympics athlete for a daughter, and I know she’ll continue to make me proud and amaze me with her accomplishments, both in Special O’s and beyond.

05.18.09

culinary treasure

Posted in Uncategorized at 5:43 am by Musings From A Michigan Mom

Looky what I found in our backyard!

morel

A morel mushroom!!  LOVE these things.  And unless you know the right place and right time to look, they are really difficult to find.  And there it was, all by it’s lonesome, under a pine tree in our backyard.  I almost ran it over with the lawnmower because I thought it was a pinecone!

I’ll saute it in some olive oil and cut it into three pieces for all of us to enjoy.

busy week ahead!

Posted in Uncategorized at 5:38 am by Musings From A Michigan Mom

Ah, why is it that it takes so much work to get ready to relax?

Next weekend is our annual camping trip to Camp Cutler, and I’m so looking forward to it.  Getting ready for camping?  Not so much.  There’s cleaning our ancient popup, packing, shopping for supplies…. I’m definitely going to need that relaxation in front of the campfire!

05.16.09

Saturday 9

Posted in saturday 9 tagged at 9:14 am by Musings From A Michigan Mom

1. Who do you think is sexy?

2. When does it become love?

I think it’s different with everyone… for me, I knew it was love with the man who would become my husband when I had the stomach flu, and he sat with me, and it didn’t scare him away.

3. Are you a good dancer?

No, not at all.  Doesn’t stop me from wanting to dance though.  Alcohol helps to overcome and self conscious feeling I may have about it.

4. What magazines do you read?

Allure, Entertainment Weekly, People, Maxim, and National Geographic.  Oh, and Cosmo, too, although it makes me feel old)

5. If you could have any name, what would you call yourself?

I’m so used to my name, I can’t think of anything….

6. Have you ever ridden in a limo? If yes, when?

Yes, on several occasions.  The first time was when I was 18, and it was a limo provided for the family when my grandfather died, to transport us from the funeral home to the cemetery.  Thankfully, the rest have been much happier occasions.  We rode in a limo when we were on the Sally Jesse Raphael show.  We took a limo when we went partying with my brother in law and his new wife after their wedding and reception.  And we took a limo to and from the airport for Anna’s Make a Wish trip.

7. What is something you really like to do?

I would love to visit Scotland.

8. Last chance: Who wins Idol, Kris Allen or Adam Lambert?

A week ago, I would have said Adam, by a landslide.  But no one expected Kris to beat out Danny for the finals, so there’s a chance that Kris’s fans may keep up the momentum and outvote the Adam fans.

9. If you had to, what animal would you choose to be?

A cat.  My cat seems to have a pretty easy life!

05.15.09

Friday Fill-Ins #124

Posted in Friday Fill-Ins tagged at 7:10 am by Musings From A Michigan Mom

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1. If we had no winter I would be very happy.  I hate snow and cold.

2. My daughter is a perpetual astonishment.

3. If I had my life to live over I would try to avoid the mistakes I made in the past.

4. There are not enough minutes inside of four and twenty hours.

5. If you’ve never been thrilled you’ve never seen your favorite musician play live.

6. To be interested in the changing seasons is to be amazed by nature’s wonder.

7. And as for the weekend, tonight I’m looking forward to ordering pizza, tomorrow my plans include a whole lot of nothing and Sunday, I want to do pretty much the same as Sunday!

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